Showing posts with label support. Show all posts
Showing posts with label support. Show all posts

Wednesday, October 17, 2012

Photo's of Awareness, thanks everyone.

Since beginning this journey with my wife I have seen some of the most unique ways to show support.  
I wanted to share some of these as I think they are a wonderfully whimsical way to share awareness for a very serious problem. I intend to update this each time I find something that really stands out to me as a unique form of support.






Monday, August 27, 2012

Emotions vs Radio Dermatitis



One of the most under looked side of radiation treatments, is the the emotional turmoil brought on by the treatment. I have tried to observe and document the entire process of my wife's cancer treatment from discovery through to her final treatment. I decided to do this because once she had been diagnosed, I began to research any and all information i could get to learn as much as I could. My attempts found most of the normal info we had already received from her various caregivers. Although I did find some information about emotional and mental support, I did not find much in the area of actual first hand observations of a patient and close family member.

I'll first start by saying my wife is very strong person with a normally upbeat attitude. When the treatments began she was excited at the thought of just six more weeks and she would be clear of all treatments and could resume a normal pace without daily office visits. The first week went by without much change at all both physically or mentally, she had noted that right after the treatment she would feel slightly nauseous, but only momentarily. At this point we're assuming maybe it won't be so bad. I then started researching the side effects, some were fairly intense looking burns some were somewhat superficial. I am still at this point trying to believe that hers will be of the more superficial type.

The second week was for the most part the same as last. I have noticed a little darkening of the skin from the bottom of her breast up to underneath her arm. She is still in a great state of mind at this point still her only complaint is the light nausea she is experiencing. We have noticed the darkening is around fifty percent darker on her actual incision than anywhere else. We asked the doctor and he told her that the radiation had a tendency to "bounce" in folds. I will research this further and try to bring more on this at a later date.


Week three finds the visual effect more noticeable as is the emotional. At this point more so than the pain she has become very concerned with the outside effect of the radiation, it looks similar to an extreme sun burn on the verge of peeling. The areas that look moist and ready to peel is the areas she says burns and tingles almost constantly. She was given a product made from aloe and lidocaine  this seemed to soothe it but only after an initial burst of pain and stinging lasting about two to two and a half minutes each time she applied it. She reported to me that it did indeed help some but that she didn't think it was really worth the pain it caused for the good it did.


When we began week four was the first time she told me how she dreaded the thought of going for the treatments. She knew all this was going to become worse as the treatments progress and it really began to weigh heavy on her mind. I can only imagine having to face on a daily basis the very thing that was causing a great amount of discomfort. It was at this point we decided to start counting down the treatment just to be able to visualize some end in sight. This is the first time throughout the entire cancer treatment process she seems to have problems with the emotional side of herself. I do know at least in the case of my wife, she has come to think of herself as Superwoman and now that she has to face the fact she is indeed human and has emotions and feels pain makes it hard. I would think a lot of others have to face these same hurdles. I see a lot of these ladies go through so very much and they just go head strong into all of it, I know it must be very demanding emotionally. I must say I have met some truly amazing people during this journey.

A brand new friend/ Silver Sulfadiazine 
She has  just wrapped up week fives treatments and the effects are far beyond where we had hoped they would ever reach. The darkening has become a lot larger area covering the entire upper quarter of her torso. She has also begun to open up in small places where the "burn" is at it's worst point. The area of the original surgery incision is open and pink, with two areas that appear to go beyond her skin and into the actual flesh. Her doctor prescribed a topical cream Silver Sulfadiazine  that is specifically for the open areas that she is encountering. The cream seems to help over ll but only after brief moment of excruciating burning and stinging, she says it's far worse than the prior aloe based product but does a far better job so she has used it accordingly and it does indeed ease the pain  thus relieving some of her stress.

We are now entering the final week of treatments, the underside of her breast is open and weeping in an area about twelve square inches. She still has only two actual open places, I do hope this stays like this. During this last week of treatments they will "dial in" the radiations path to only cover the are that contained the original cancerous mass. I hope this will restrict the progression of the overall burn but I fear the treated area will become much worse. I have to say I don't know this to be a fact, but I still have some fears. The open areas are requiring treatment with the cream around four to six times a day now. When the the final treatments are done I will report back here with the overall appearance of everything. I will also continue to keep a record of the effects after all the treatments are done. They said she will continue to react for six to eight weeks after the final treatment.

Sunday, August 26, 2012

Thanks Team Awesome


Today's post is basically to give thanks to all those people that helped to guide us on this journey thus far. We are nearing the end of the radiation treatment, and none to soon I might add. My wife is really becoming tired from all the ongoing treatments and a forever string of appointments and meds.I know she is looking ahead to when a small break in the action may occur. Here towards the end of the treatments, she has become a little less than excited about the process, but the two ladies assigned to her case have really helped to fight off the depressive thoughts and energy.
Today marks the beginning of the end of radiation treatments for my wife, she will have been through a total of 33 treatments over the past weeks. This has been a long hard journey through these ongoing breast cancer battlefields. I have to say I am proud of my wife for facing all this as she has, she is a fighter and a winner. I pray everyone that reaches for help in this kind of situation can be as fortunate as she has in finding, a community option for treatment and support. The Harbin Breast Center
Harbin Clinic is a team composed of more than 200 providers and 1,400 employees in 20 locations throughout North West Georgia. But this is only part of the team. Approximately 1,000 other physicians not directly associated with Harbin Clinic from throughout North West Georgia and Alabama regularly refer patients to Harbin Clinic and collaborate on care.
Hospitals, diagnostic centers, insurance plans, and other health care organizations throughout the region coordinate services and work with Harbin cancer doctors. For patients at the Harbin Clinic Cancer Center, this broad team approach to cancer care improves outcomes. From the development of a shared electronic medical record to the recruitment of world-class doctors, Harbin Clinic continues to provide patient-care leadership in the region.
The individual team members at Harbin are some of the best I have ever encountered, the techs assigned to my wife's treatment have made her very comfortable in an un-comfortable situation. I have secretly named these two ladies "Team Awesome", they have given my wife so very much support and guidance. The caring they exhibit is far beyond what I have seen in the past in most health care environments, not to mention an environment such as cancer treatment. So this is my thanks to all of the people involved and especially to Team Awesome (Kristine & Michelle), thank you so very much!


Wednesday, July 4, 2012

Finishing? Chemo ; Independence Day

This is the week my wife finishes her chemotherapy. It's seems to me a very ironic and strangely pleasing that the end of this step in my wife's treatment is falling in the general time of Independence Day. I do feel a certain sense of new independence, and relief. I know the road ahead is still going to be eventful and unknown, but I am very thankful that this particular ordeal is over. I must say this experience has both changed and reinforced some of my views of healthcare facilities in general. It is a well know fact that, King Hostile doesn't "DO" doctors. To my much appreciated surprise I found several of the professionals the did and did not fit in my normal Medical Clowns categories. I found the particular group from the infusion center to be caring and compassionate. I know everyone that goes through this must be as worried and confused as my wife and myself. I found it very odd that even a lot of the actual doctors showed little or no care in the questions that were foremost important to us. I got more information about the real effects and whats to be expected from the crew at the infusion center, than from any other source we had available.
     I am so thankful that this process has been a lot easier for her than I had imagine. I guess it's always best to pray for the best and expect the worst and reality falls somewhere in between. Still at this point she has yet to lose control of her nausea to point of vomiting. She was very set on being one of the few, if not the only person, to go through this process without vomiting. i still don't really understand why this was so important to her but I am glad she achieved this goal if she wanted to. The last treatment falls where she will miss one of the Nuepogen shots that she is given after each treatment. Today being Independence day the breast center is closed so she will begin the regime again tomorrow. I will relate how this affects her treatment in a later post.
     That's all for now I think I will take the rest of the day to relax with my wife, and play some 8 Ball on Google game with her.

Sunday, May 27, 2012

Cancer in the Community


Cancer in the Community 

This post is just a simple heads up and thanks to the ones that have really been supportive and informative.


The Lydia Project


Lydia's free services are meant for women currently facing cancer. Receive support for yourself or any woman currently receiving treatment for any type of cancer anywhere in the world by using the buttons to the right to request a tote, prayer, or support.

The Challenges/Situations Lydia Addresses:

Women with cancer
Suffer with depression and feelings of isolation; are afraid to share their fears with family and friends; and seek out tools and other survivors to help them cope with their emotions during this time of crisis.

Caregivers and Loved Ones
Struggle with what to do or say to comfort the woman in their life with cancer; search for tangible signs of comfort and support to give to the cancer patient; and need a safe place to discuss their fears and emotions about their loved one.

Health care Providers
Look for places of referral for cancer patients and families to find emotional and spiritual support; desire to show compassion, empathy and community support to the cancer patient; and value practical tools that complement medical treatment.



Cancer Navigators



You received the diagnosis, and you have begun your journey. Now what...?

Maybe you have done just fine on your own until now...Or maybe you have had wonderful friends or family that have been a wonderful helping hand.

Now, Imagine someone who has been through cancer a dozen times, maybe even a hundred times.

Wouldn’t you want to know what they know? Wouldn’t you want to learn the secrets and shortcuts?

Imagine someone who wants to help you with your financial situation?

Maybe you have no insurance and you need help paying for bills, medicine or even food.

Maybe you are having trouble finding transportation to your treatments, or to the grocery store.

Imagine someone who knows the answers to all the questions you forgot to ask while you were at your appointment.

Wouldn’t it be nice to get those answers with one phone call?

Cancer Navigators is this help...

Harbin Breast Center

Harbin Clinic is a team composed of more than 200 providers and 1,400 employees in 20 locations throughout North West Georgia. But this is only part of the team. Approximately 1,000 other physicians not directly associated with Harbin Clinic from throughout North West Georgia and Alabama regularly refer patients to Harbin Clinic and collaborate on care.

Hospitals, diagnostic centers, insurance plans, and other health care organizations throughout the region coordinate services and work with Harbin cancer doctors. For patients at the Harbin Clinic Cancer Center, this broad team approach to cancer care improves outcomes.

From the development of a shared electronic medical record to the recruitment of world-class doctors, Harbin Clinic continues to provide patient-care leadership in the region.